Health, genetic and other body information
Extracting information from the body was once limited to the field of medicine. However, today this type of data is increasingly being collected for a wide range of commercial, recreational and forensic purposes. Genetic results are used for ancestral research, fingerprints can replace passwords, facial or voice recognition software can identify individuals, and data about exercise and sleep patterns can be easily collected by wearable devices.
The information generated by our bodies is uniquely personal, and as such it can be highly sensitive. As more and more information about our bodies is collected and digitized, particularly by non-medical organizations and individuals, the impacts on privacy must be considered.
Explore the links on this page to learn more about privacy issues related to health, genetic and the body as information.
Find out which organization to contact if you have concerns about the privacy of your health information.
Read information for the government and private sector about the privacy implications of biometrics and how to strengthen privacy safeguards for biometric systems.
Read the OPC’s position regarding the collection, use and disclosure of genetic test results.
Find information and guidance for private sector organizations and employees on making proper privacy decisions in a possible pandemic situation.
Explore links to research about privacy and health, genetics, biometrics, and other information about the body conducted or funded by the OPC.
Find guidance to help organizations handle personal information appropriately in the event of an emergency.
Learn about key privacy risks associated with these tests and questions to consider before purchasing.
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